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Advice for Teens
Education
Symptoms, hospitalizations, and fatigue can make it hard to focus and attend classes. This can lead to school absences ranging from days to weeks.
Handy tips
- Communicate with your teachers: In these instances, it is important to communicate your health situation with your teachers so that they
can support and assist you as much as possible. Ask your doctor to write a letter to your school co-coordinator stating how your
condition will impact your studies (e.g., trips to the bathroom, fatigue, concentration)
- Get in touch with the disability coordinator: Most school and tertiary institutions also have a disability coordinator. The disability
coordinator can convene with your teachers, and collaboratively you can devise a plan to manage school work and assignments during
disease flare ups
- Research flexible schooling options: Other more flexible schooling options, such as distance education, exist. These eliminate the need
to be physically present in a classroom
- Apply for the Educational Access Scheme (EAS): If you are sitting exams to obtain a University Admissions Index (UAI) you can apply for
the EAS (Educational Access Scheme). It may allow for flexibility in the cut off for many university courses and it also flags you
to Student Equity and Disability at the university from which you accept an offer to
Friendships
Feeling embarrassed by IBD can lead to an unwillingness to disclose struggles and chat openly. This can lead to feelings of isolation and depression.
Handy tips
- Use language with which you are comfortable. If you don't want to go into specifics about your condition then you can use terms like 'chronic illness'
instead
- Educate your friends: Print out some pamphlets on IBD to give to your friends so that they can have a better understanding of what your illness
is all about
- Change your perspective. If you had a friend who was ill, think about how you would react and the kind of support you would offer
- Join a support group (e.g., ChiPS – chronic illness peer support for adolescents aged 12-25) or the Crohn's and Colitis Association support groups.
Transition from paediatric doctor to adult doctor
Transitioning from pediatric to adult GI is not an easy task. Ending a close and trusting relationship and beginning a new and unknown one can
be quite overwhelming.
Handy tips
- Interview potential new doctors
- Discuss health care transition with your pediatric doctor; don't be afraid to express how you are feeling
Body image
Due to the nature of IBD, and its treatment, individual can feel anxious about their body and how they think of it, and also how they think other
individuals see it. If you are concerned about your body image, talk to someone about your concerns. Often your concerns can be allayed after
talking to a partner, or trusted family member or friend. If you continue to worry and it has a negative impact on your everyday life, please
talk to a doctor about what options to resolve this concern are available.
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